Update: Had a follow up neuro appointment this week. Dr Beall finally read my MRI from October. GOOD NEWS!! I have 3 LESS leisions!! That means the Avonex was helping. However, I am not on Avonex anymore. I am on Betaseron, so we need to do another MRI to see how that is working. The Betaseron is better on my body that is for sure. Almost all my side effects from it are gone. Some injection site reactions on & off and ocasional nausea.
Dr Beall says we can take the MRI anytime between now & the end of the year, it is up to me. I see him again in August, so I will decide then. No hurry. It is just for curiousity's sake.
I discussed the new swallowing issues & the hand tremor. He seemed more concerned with the hand tremor and advised me to watch it. If it continues or worsens, he wants to know. He said this would indicate advancing of the MS. He also invited me to a seminiar he was speaking at this past Monday. I was unable to get a babysitter due to unforseen circumstances, so unfortunately, I missed it.
He wanted to use me as an example of beginning stages of MS to compare with some of his more severe patients. Very flattering...and disappointing I couldn't attend. It was at Lucianos...MY FAVORITE!! **SIGH**
Overall, I am still doing pretty well. The hand tremor comes and goes. My right foot has been dragging when I over do it. And pretty much all my symptoms are like this lately. If I do too much, I show symptoms, but no flare-ups for now.
So, my injections are proving to be the mind erasers they are told to be. Well, at least fror the leisions. 3 Less is good. Hopefully, the new tremors aren't inndicative of new ones coming. But we will stick with the positive note until we can knbow for sure. Love & kisses to all!!
Wednesday, May 19, 2010
The Brain Farts Went A Walkin'
On May 2, 2010 We had our MS Walk in Troy MI. There were a total of 31 Members on our team and most of them made the trip to join us. That morning there were threats of storms and lightening. Because of this, the officials for the Walk Ms of Troy cancelled the walk. Instead held a "Dance Party" in the gym.
This was extremely disappointing to everyone. Especially since as of 9:00am that day, the local AM radio stations were saying that the storms had moved out of the area as well as the severe threats. This did not change the minds of the officials. So, we checked in, took some team photos (that I am still waiting for) and had some breakfast. At breakfast we decided to have our own walk.
The rain had moved out and the weather was turning out pretty good. So, after some more pictures we headed outside of Troy High School and were on our way. Since we did not have a marked route we were left to our wits. We walked about 2 miles total. It felt good to at least try and make the effort.
We have raised over $3,600 as a team!!! So exciting!! The efforts of my team and all the wonderful people who supported me are very touching. I am truly stunned at the outpouring of love & support. Thank you!!
Next year The Brain Farts hopr to make the walk officially, but no matter what, we will not give in!!
(On a side note: My mom, and my children, did drive to Frankenmuth, MI to join my friend Kelly in her Walk MS. We were the Wheelchair Hotties! It was a very beautiful day and a scenic route. The golf carts that came around to check on us and offer a ride, just in case, were very comforting. I really wanted to give in and accept the ride, bbut I toughed it out. We walked 3 whole miles! Woo Hoo!!)
This was extremely disappointing to everyone. Especially since as of 9:00am that day, the local AM radio stations were saying that the storms had moved out of the area as well as the severe threats. This did not change the minds of the officials. So, we checked in, took some team photos (that I am still waiting for) and had some breakfast. At breakfast we decided to have our own walk.
The rain had moved out and the weather was turning out pretty good. So, after some more pictures we headed outside of Troy High School and were on our way. Since we did not have a marked route we were left to our wits. We walked about 2 miles total. It felt good to at least try and make the effort.
We have raised over $3,600 as a team!!! So exciting!! The efforts of my team and all the wonderful people who supported me are very touching. I am truly stunned at the outpouring of love & support. Thank you!!
Next year The Brain Farts hopr to make the walk officially, but no matter what, we will not give in!!
(On a side note: My mom, and my children, did drive to Frankenmuth, MI to join my friend Kelly in her Walk MS. We were the Wheelchair Hotties! It was a very beautiful day and a scenic route. The golf carts that came around to check on us and offer a ride, just in case, were very comforting. I really wanted to give in and accept the ride, bbut I toughed it out. We walked 3 whole miles! Woo Hoo!!)
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