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Friday, October 16, 2009

MS is a Pain in the Brain...

So, I started the new powder form of Avonex last night. Basically it is the same medicine, I just have to mix it myself. Dr. Beall is hoping this will be tolerated by my body better. If today is any indication, then I am not hopeful. I have been in pain all day long. I still am and it isn't stopping, which is worse than before. I don't know. Maybe the medicine triggers my Fibromyalgia? It is different from that pain or that pain times 10! Who knows? Guessing as always. I see him November 10th, and if there is no improvement than he wants to switch to Betaseron. I just want something that works. ANYTHING that works. So far, I feel that I haven't had much improvement. Dave insists I have had better days. Maybe he is right. It is hard to remember those moments during these painful ones. I still feel I'm in the middle of a relapse and I know this isn't a cure so...

The nurse who came to train me on this shot was very nice and very understanding. She actually listened when I spoke and acknowledged the symptoms I told her about. Novel idea, I know. Anyway, this week with my neurologist office was another episode of the keystone cops. They say they will accomplish something and when they don't, they blame me. I almost didn't get my prescription or a nurse to come out to see me due to their apathetic attitude. Well, I have had enough. I have decided to write a letter to the head of the neurology office and tell him about all that is happening. I also will be asking for a phone call or a face-to-face with him at my next appointment. Patients shouldn't be made to feel this way and my patience is certainly been tested. So we shall see what happens there. Hopefully, they don't start tripping me at my appointments, if they find out I complained. Oh, well. I can take care of myself. MS may be a pain in the brain, but Dr. Beall's staff is a pain in the butt!

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